He Speaks Music.

We’ve been watching a lot of The Little Einsteins lately, and I mean a lot. Maria loves them and to my surprise, so does the little guy. I’ve never, and I mean never, ever seen P sit and watch a whole episode of anything, even kid-friendly and age-appropriate shows. So this is a welcome surprise because he gets to unwind on the couch with his little sis and nodding off is much much easier,as well. So here we are watching a segment that’s titled “He Speaks Music” and without wanting to I look over to my little guy. What does he speak?

Tonight as I was getting him ready in his pjs I said: “Panayioti I love you this, this much” and I extened my arms as wide as I could. “How much do  you love me?” I asked him. He raised his arms, with his index finger extended and said “dee dee”. With a smile. I guess P doesn’t speak music, but something else. I once read about a mom who very cleverly stated that her son speaks Alienese. That made me smile. It still does. There are days when all we hear all day long is “dee dee” or “dan dan”. If that’s not alienese I don’t know what is.
P will turn 6 in just five months and has yet to speak audible, whole words. Real words. Sometimes when I let this thought, this fact, sink deep inside me, I start to feel fear. True fear. The type of fear that makes your knees tremble and want to vomit at the same time. I know, it’s not a great feeling and not something I want to dwell too too much on because I’m his mom and am supposed to think only positive thoughts, but sometimes, and I don’t know why, I want to feel this fear too. I don’t want to shut my eyes to reality. I want to accept everything, even the negative, scary as hell parts of life. My son is going to turn 6 soon and does not speak . . . still.

We had our second appt. at the special eye doctor today and it was amazing!! Reposting my first post about autism and eye exams so that people can get a sense of what this is about, and how it can change lives!!

It’s amazing how much I’ve learned the past 2 1/2 years about developmental disorders. Just when I thought there couldn’t possibly be anything else to learn I’ve come to find out about prisms/eyeglasses and autism. Panayioti doesn’t concentrate on objects when you ask him to, he doesn’t point well either. He takes his fingers and wiggles them very close to his eyes. Stimming, it’s called. He rocks back and forth sometimes, too. He doesn’t extend his arm out when you throw a ball at him, either. Could all this be because he has vision problems? Yes! We had an appointment today with an optometrist who specializes in children on the spectrum. Amazing guy, both Panayioti and I liked him from the get-go. When we walked up to his office he had his coffee on his desk, iced cappuccino, and the first thing my boy did was grab it and take a nice long sip of it from his straw! Of course I apologized but my apology wasn’t heard because he was laughing so hard!! He was so cool, relaxed and laid-back that my boy was also cool and relaxed. Didn’t complain or whine once during the whole hour long exam and eye exams aren’t always the most comfortable of exams. Afterwards he informed me that he will be in contact with Panayioti’s OT and we will take it from there. I don’t know why but I left from there feeling happy. My boy’s vision will be improved. He’s going to help my Panayioti 🙂 I want to share something I came across and which I found fascinating. As the optometrist suggested I googled yoked prisms autism and this was the first thing that came up. The things in bold are just some things that totally resonate with us. Sorry for the copy/paste, I just really wanted to share this info.

Vision problems are common with autism and many times are overlooked. Normal autistic behaviors, such as: poor eye contact, looking though or beyond objects, extreme aversion to light, unusual reaction to sight, lack of reciprocal play, inordinate fear of heights or lack of appropriate fear of heights and stemming, could be visual symptoms.

 Kyle’s story is one that his mom wants as many people to know so his frustration does not have to be repeated. While in a park, when he was three years old, Kyle walked over a 50 foot cliff. Years later, when he had a developmental visual evaluation, it was found that he lacked depth perception. No wonder he had walked over the cliff. In grade school, on his Individualized Educational Program, the staff wrote that he lacked reciprocal play because throwing and catching a ball was difficult. He had been practicing throwing and catching in occupational therapy for 2½ years. After getting prism glasses and six weeks of vision therapy, Kyle was able to throw and catch a ball. Kyle had an unusual gait. It was stiff and flat-footed. He wouldn’t run. After vision therapy, he could ride a bike and play on monkey bars. After vision therapy, his gait changed. Kyle would look off into space; he seemed to be tuning out vision to be able to attend to auditory information. With auditory, occupational and vision therapy, his senses started working together instead of only being able to use one or the other.

 Kyle’s mom wants people to imagine a quiet pool of water. When you drop a pebble in the middle, the calm water ripples outward. One small pebble can create quite an impact. If there is a visual problem, the vision problem can impact motor development. If motor development is impacted, that can impact social and communication skills. Kyle’s mom thinks that if they had known about his visual problems when he was much younger, many of his motor and social deficits would not have been so significant.

 If your child has a diagnosis on the autism spectrum, be sure they have a visual evaluation with a developmental optometrist as soon as possible. A person does not have to be verbal in order to find out if they are nearsighted, farsighted or have astigmatism. Visual games will be played to see how the person’s eyes aim, focus, track, follow, move, see 3-D (depth perception), and process central-peripheral information.

 Yoked prisms are special lenses that bend light in the same direction: up, down, left or right. These lenses can have dramatic results by creating a difference in how the world is seen and allows the person to change how their world is perceived. In the visual evaluation, an activity such as throwing and catching a ball, walking up and down stairs or using scissors to cut along a line may be done. While wearing different powers of yoked lenses, the same activity is repeated and evaluated. The doctor may prescribe yoked prisms for special activities or for full time wear. The lenses may use them as an integral part of vision therapy.

 Visual problems are common with those that have a diagnosis on the autism spectrum. Having a visual evaluation by a developmental optometrist may lead to treatment that can have a ripple effect on sensory development and integration.

Read more: http://www.visionhelp.com/vh_autism.html#ixzz31cyAhvFx